Returning to earth

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I need to develop a new napping strategy.  My inability to be out of bed for any length of time is starting to interfere with my very limited engagement schedule.  I’m in bed at 4 o’clock on Saturday afternoon, having spent the entire day here and I could stay in bed for the night, but I need to get up as I’m meeting my parents for dinner in an hour. Continue reading

Waiting for Starbucks

I’m on the home stretch!  Only 17 treatments left to go.  Olivia arrived on Thursday night and came with me to UWMC for radiation session #24.  Four more weeks and I get to home with these two:

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This phase is going well now.  The treatments are easy and efficient, and I think I know what to expect in terms of side effects.  Other than fatigue, my health has not interfered with our weekend plans.   Continue reading

Romance in Seattle

Today has been red-circled on my calendar for a long time, and not because it is treatment #23.   On Tuesday I passed the half-way mark and while it feels like I am living at UWMC, I am really enjoying the experience.

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The therapists in Suite C are efficient and friendly and are keeping me well informed.  They let me know when we have delays and the reasons for them and alert me to any changes in our plan or issues with technology.  Continue reading

So fortunate

Seattle Children's Research Center window sign

Seattle Children’s Research Center window sign

My woes at UWMC continued this afternoon.  I sat, tired and cold, wearing only a hospital gown for more than an hour, waiting for my treatment.  I had stripped down early as I needed to be fitted for a bolus (more on that later).  A nurse noticed my shivering and brought me a blanket, just as my pity party was starting in full force and as a staff member rolled a stretcher down the hall to the doors of the treatment room.  I must have looked puzzled and she said: “Oh, the patient in front of you is a child; he needs to be anesthetized for each treatment so we need a stretcher to take him back to his room.” Continue reading

Get it together…

"Get it together Paul - we can do this!"

“Get it together Paul – we can do this!”

This has been a rough week, a really rough few days.  I am still working on a positive post, and will finish it as there is so much good for me to write about.  I have so much support, love, help, and care and I have an excellent team of health care professionals working on my cancer.  I know and feel the love and all of the good, but it is hard today.  The last few days have been terrible.  Continue reading

Fear and Longing

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Two emotions are interrupting my relaxed, treatment-less Saturday morning.  It is brilliant here; the sunlight reflecting off the Seattle Times Building’s windows is lighting my room.  I am going to head out for a brisk walk to try to calm my mind.

I am scared of what is to come.  It is a new emotion.  I wasn’t overly fearful or anxious before my surgery (thankfully I was pretty unaware of what they were going to do or I would have been too frightened to show up at VGH), and I wasn’t worried starting treatment at ProCure, but I am scared thinking about my radiation at UWMC.  Why?  Continue reading

Lucky Me!

20141013_083943Two weeks and seven treatments down, but more importantly, a few hours until Olivia and Stella arrive!  I am so looking forward to seeing them and to a weekend of seeing Seattle, being tourists, going to the farmers’ markets, walking, and not being radiated!  Not that the radiation has been difficult.  It is time consuming and awkward but the side effects have been minimal.  I can feel a slight sunburn and I am feeling tired, really tired.  I slept 14 hours on Thursday, which isn’t a bad thing, although it was a strange, restless, dream filled sleep, and I was visited for the second time by my bus incident of Tuesday.  I am beginning to wonder if this was a dream to begin with. Continue reading