My woes at UWMC continued this afternoon. I sat, tired and cold, wearing only a hospital gown for more than an hour, waiting for my treatment. I had stripped down early as I needed to be fitted for a bolus (more on that later). A nurse noticed my shivering and brought me a blanket, just as my pity party was starting in full force and as a staff member rolled a stretcher down the hall to the doors of the treatment room. I must have looked puzzled and she said: “Oh, the patient in front of you is a child; he needs to be anesthetized for each treatment so we need a stretcher to take him back to his room.” Continue reading
Two emotions are interrupting my relaxed, treatment-less Saturday morning. It is brilliant here; the sunlight reflecting off the Seattle Times Building’s windows is lighting my room. I am going to head out for a brisk walk to try to calm my mind.
I am scared of what is to come. It is a new emotion. I wasn’t overly fearful or anxious before my surgery (thankfully I was pretty unaware of what they were going to do or I would have been too frightened to show up at VGH), and I wasn’t worried starting treatment at ProCure, but I am scared thinking about my radiation at UWMC. Why? Continue reading
Twenty-five thousand people work at UW Medicine. Twenty-five THOUSAND people and I feel like I need them all. “The Radiation Oncology Services at the University of Washington Medical Center provide comprehensive and personalized evaluation, consultation, planning, radiotherapy and follow-up for patients with a wide range of cancers.” Yup, right off their website. Who doesn’t want comprehensive and personalized evaluation, consultation and planning? Of course I do. But right now I just want the PLAN. I was really hoping that today, after treatment number nine, Dr. Tseng was going to give me ‘the plan”; the number of proton boost treatments at ProCure, how many photon treatments at UWMC, and the date I would be going home. Continue reading
Two weeks and seven treatments down, but more importantly, a few hours until Olivia and Stella arrive! I am so looking forward to seeing them and to a weekend of seeing Seattle, being tourists, going to the farmers’ markets, walking, and not being radiated! Not that the radiation has been difficult. It is time consuming and awkward but the side effects have been minimal. I can feel a slight sunburn and I am feeling tired, really tired. I slept 14 hours on Thursday, which isn’t a bad thing, although it was a strange, restless, dream filled sleep, and I was visited for the second time by my bus incident of Tuesday. I am beginning to wonder if this was a dream to begin with. Continue reading
Welcome to the next phase of my journey. I’m in Seattle and undergoing radiation. This week has been busy, emotional and exhausting, and I’ve been carried through it by the support I have received from family, friends, health care professionals and strangers. I am two treatments in now and counting down the days until I am finished. It looks like December 30th will be my end date, and now that we have turned over into November it doesn’t seem that far away. I have added a countdown calendar to this site so that I can watch the days tick off until I go home. Continue reading